Update/Still Having Problems/

I guess I always will have problems, I'm so depressed right now with everything. I'm being put through a lot of tests with my new Rheumatologist, I feel like a guinea pig, and I'm so tired of it all, this week I'll have more radiation then I can count on, and yesterday I had 8 vials of blood taken, she has told me I'm a difficult case, but does what to get to the bottom of my issues with my immune system.
On to my back and neck, I see my neuro-surgeon next week for a follow-up, and in that department I'm not doing well, I'm still having severe pain in my lower back into my leg, burning, leg numbness, toe numbness, and now of which I'm very frightened of I've lost some sexual feelings(don't read this if you don't want to), I'm so embarrased to even mention it, but I know this is not a good thing. As for my neck, If I don't have support behind my head when I sit I feel like my neck is going to come off, plus I've been having a lot of finger and hand numbness, with burning starting again into my arms.

I'm so frustrated, and so very tired(this is the immune kicking in) the tiredness that is, all I want is a break from everything, and I just cannot seem to get it.
I haven't been here, for several reasons, I don't want to burden all of you more then I have to cause I know there are others that are so much more wrose then me, and I'm in so much pain that I just cannot sit here and talk to you all.
Life has been a struggle lately for me, this past weekend I actually thought I would loose control, my mind that is I was so miserable I just wanted to give up, I honestly don't know how much more of health issues I'm going to be able to handle.
Having all these tests for my immune problems and other things is scaring the heck out of me, and trying to deal with the holidays it hasn't been a happy time, I usually love christmas time, but this year it does feel a bit blue.
Thanks for listening, and now that I do care for each and every one of you, and think of all you all the time and wish that there was some magic wand I could wave over everyone and make you all better.
Tulip15

Hi Tulip. I'm so sorry you are having all these problems at one time. So many doctors, so much medication, and no answers. It's enough to make anyone depressed, believe me.

Are you on an anti-depressant, because if you aren't one of your doctors have let you down. I don't think it's possible for anyone to face so much without needing some help to keep some kind of sanity, so please reach out for that kind of help if you need it.

I had 2 discs fused in my neck about 10 years ago. My main symptom was the same feeling you have.....like my head was way too heavy for my neck. There wasn't a lot of pain, more like tightness, but the heavy feeling was unendurable. I think I could have coped better with pain; anyway, I had the fusion and haven't had a bit of trouble since. I'm just telling you this so that maybe you can have some hope that at least that part of your problem can be solved for good.

Tulip, you are right to be considered about the perineal numbness and if your present doctor is not taking this seriously, perhaps you should think about getting a second opinion about it. Yes, I know! Another stinking doctor! But I suspect that you are aware that this particular symptom might be especially important so you shouldn't allow it to go without being thoroughly checked out. Don't be embarrassed to talk to your dr. about it, or for that matter, don't be embarrassed to talk to us! There are many people here who have experienced some of those symptoms and I think you know you can talk about virtually ANYTHING here. These are your friends, people who care about you. I hope that one day, I can be counted as one of those friends.

Christmas is a hard time for most of us. We have to reach very deep into ourselves to find anything to be joyful about. For me, I have to remember why we celebrate the day and that in itself makes me smile. All my kids are grown, most of my gchildren are getting older and there's no more Santa to have fun and games with, and that seems to rob me of most of the joy I used to have. Now I celebrate the day more as a birthday and it does bring it's own joy.

Be good to yourself.

Carol

I have to

(((((Tulip))))))))), so sorry for how you're feeling, I can definitely relate. I usually try not to let these things bother me too much, but I've been a bit down myself lately. Acutlly i havent been on as much either, for some of the same reasons, plus sometimes I just dont know what to say to others. Sometimes the words just arent there to get through to someone. But i'll try my best here.

I am not sure what other symptoms you're having on top the spine and nerve symptoms, but I've been through my share of blood tests with the rheumatologist & other docs over the years. It's been suspected I have lupus and that my spine issues are unrelated, which they could be. But i've had so many flare ups of symptoms, many of which would fit lupus.But i've had many doctors & a hospital ask if I have RA, but tests always come back negative. This past June (and lasted almost 2 monhts) I had another flare of fatigue, joint pains, ankle swelling, new pains in my hands, new vision problems, and new kind of rash or something. Also been getting some hives again. My body temp changed again, i'ts all very strange. My current rheumy has told me in the past I have lupus, but then over the past 1/2 yr from his actions & what he says, it doesnt seem he thinks that. I really dont know anymore. He sent me for bloodtests right before Labor Day, but didnt have me make an appt. And the office never called me w/ test results. Im sure they would say all is okay again, though. Which is VERY frustrating. So I know exactly how you feel regarding that. Plus I keep getting what seems to be disc herniations or somethign going on in my spine like every few weeks. I've had the nerve pain down my leg& foot; now I have it in both hips and sometimes groin. It's calmed down some since my last episode a couple weeks ago, but it's still bothersome & i cant walk around for more than a couple minutes.

I think I know what you mean about how your head/neck feels like it's going to fall off. I've had bad neck pain before into my left shoulder, with bad spasms & headache. It's like the head is just way too much weight for the body and it's going to snap off. Luckily when I've had this, it never lasted for long. I think mine had to do with bad posture from having lumbar stenosis, though it's happened again after my surgery. Everytime something happens that causes pain, it's sooo draining. It's like, here we go againnnnnn, whatever. Plus I will probably find out before xmas if I have a really serious other problem to tackle.

I know i cant make things better for you, but know that you are not burdening any of us here by letting things out. That is what we and this board is here for....for support. Even though it's not in person, it still helps somewhat as far unburdening yourself and venting some of your frustration.

As for your new numbness, dont be embarassed...that could be serious and really needs to be looked into. So whatever you do, do NOT be embarrassed to mention that to your doctor. Your doc really needs to know exactly everywhere that you're having pain and numbness. I hope your appt goes well and let us know what he thinks afterwards.

Take care, have a good holiday, and come back to vent anytime!

Tulip - honey I am so sorry that I did not read this sooner -- first off I want to say that I am sorry that you are going thru all this. It is very painful and tiresome to be dealing with this on a normal basis but thru Christmas in there and you have a mess to contend with.

If I could I would grab your hand and tell you to come on....I might even grab a couple of other spinney friends hands too.....and we could run off to get a gentle massage by a very good looking....are you similing now ?? That a girl, we love you and want you to know that we do CARE. Now just close your eyes, close out the sounds around you, and add to this your own dream,

Okay now back to reality -- Be sure to let your docs know about this latest sensation and if you should begin having a bowel or urniary problems - incontinence - call them right away and get to an ER as this could be a medical emergency. Also please let them know you are having alot of anxiety and/or depression with everything that is going on -- be honest and let them perscribe whatever they feel is important.

Lastly remember wer are here for your 24/7 and that WE CARE. WE LOVE YA! FEEL BETTER SOON!!

Baybreeze, you sound so much like me, I couldn't believe it reading about your issues with your immune, it's the same thing I'm going through, I've had rheumy's tell me I'm lupus, another tell me I'm not but close to it, I've had two rheumy's tell me I'm positive for RA, another tells me I'm not, plus I always have very low white blood counts of which no one has really looked into it, but my family doc is a wee bit concerned about it, so last week I found a good rheumy and went to her, and she is basically starting from scratch, plus also taking into account all my previous tests results, and she did say that I am a very difficult case. I did mention to her about if my spine issues are related to my immune issues and she said absolutely no that they are not, I always questioned my neuro-surgeon on this because I always thought that the possibility was there but he always told me that I just got the raw end of the deal with my spine problems.
She put my mind at ease and said that there have been studies done on that but nothing has come to be conclusive on it and she said that my surgeon is being very honest with me.
She also might be sending me for a bone marrow biopsy because of my white counts being low, and my family doc. questioned this 3 weeks ago he asked my why no one has done that test on me yet.

Hi Carol, I do feel like my head is ready to fall off especially when I'm sitting without any support behind my head, it is such a creepy feeling. I felt so much better last Christmas and I was out of surgery only three months from my last neck fusion, then I do this Christmas, you would think it would be the other way around.
I will definitely talk to my neuro-surgeon next week about everything, and today I'll bake some cookies but some Christmas music on and hopefully that will brighten my mood, but to be honest I know it's going to kill my back, especially since I hurt already.

Thank you both for all the good words and encouragement, I don't know what I would do without this place to come to.
Tulip15

Update/Still Having Problems/ Copyright Disclaimer:
Contents of this page are from the Internet, the copyright belongs to the original page. All actions are under your responsability, please delete them after 24 hours or purchase it. Email us to report illegal contents.

1. Dieting makes you fat
2. Xenadrin and birth control pills
3. southern_mom33
4. What is the best appetite suppressant in your opinion
5. summer weight loss challenge 65!
6. Disgusted by Atkins?
7. summer weight loss challenge 64!
8. Diet Problems
9. Let me tell you about this "Trimbia" I just started..
10. Hello everyone!
11. NewAtkinsThread
12. any teens wanna do this with me?
13. Has Anyone Had Good Success With Weight Watchers?
14. Parents, loved ones
15. summer weight loss challenge 63!

No comments for "Update/Still Having Problems/".